Care at the End of Life

Care at the End of Life

After your child dies, your life will be very different. There are practical things you have to do right away, and other things you may do days or weeks later. It can help to find ways to remember and honour your child while they are still alive or long into the future.

End of Life Care

Signs, symptoms, and what to expect Like life, death is unique. However, a team experienced in end-of-life care who knows and understands your child, their health status, and your family can help prepare you for the end of a life. Read more
Choosing a location for your child’s end-of-life care The end of a child’s life is a precious and sacred time. These moments remain with family members, and many times with their health care providers, forever. One of the most important decisions that families may make is choosing a location for end-of-life care. Read more
Things to consider when preparing for end of life at home Because care focused on comfort can usually be achieved in any setting, many families choose to stay at home as their child's end of life nears. Being at home during this time allows all members of the family to be together in a setting that is familiar and most comfortable for all. With proper planning and supports facilitated by the palliative care team, families are able to remain at home for as long as it feels like the right place to be, including up to the moment of a child's last breath. Read more
Planning end-of-life care in rural or remote communities When your home and community are far away from a major care centre, you may face extra challenges in planning end-of-life care.  Read more
Spending time with others As your child nears the end of life, it will comfort them to spend time with the people who are important to them. Being together will also help siblings, friends and relatives deal with the approaching death. This section talks about some ways you might prepare visitors and help your child.  Read more

Care After the Death

What to do when a child dies When your child dies, there are lots of things you have to do and organize. Although it’s hard, it’s helpful to make some plans before your child dies. Here are some things to think about before the death, immediately after the death, and days or weeks later. Read more
Planning a funeral or memorial service Planning a funeral or memorial service for your child may feel like an impossible task. It may also feel like an important thing you can do for your child in this time of loss.  Read more

Legacy making

Honouring your child There are many ways to honour your child while they are still alive or long into the future. Here are some ideas:
  • Plan activities or legacies
  • Choose special days to remember your child
  • Talk about your child’s wishes
  • Talk about your child’s legacy
Read more